Showing posts with label Wheel Trans. Show all posts
Showing posts with label Wheel Trans. Show all posts

Disabled in York Region Council - Home Care Issue fails dignity test

I just got back from a stop in at Dan's - you might remember Dan Philion who is confined to a wheelchair by muscular dystrophy and whose simple request over Christmas to have someone put him to bed at night, as he cannot do it unassisted, has been ignored by the government appointed "caregivers" who claim they "don't have anyone available" to do this at night time. That confused me since most people go to bed at night, and if they are the community care access centre in charge of putting our disabled to bed, then you'd think they'd do that. Apparently not?

After personally assisting Mr Philion myself for the past month to bed, because his service providers apparently cannot and he has no immediate family able to,  I got fed up with the various excuses they've been feeding him. For one, if they don't have someone for that time I suggest they get someone, as obviously there is a need, and if it's happening to Dan - where people's dignity is being controlled by some company claiming they don't have the staff and "get what we give" you types of attitudes - then you can bet it's being done to others - and especially the most vulnerable who may not have anyone speaking up for them like Dan does.

YR's $4 transit rates highest in Canada
But I can tell you right now I will not let up on this issue - this I promise you! As I watch the way our seniors and vulnerable disabled are treated and expected to have a certain level of suspended rights and dignity because of their conditions is just wrong. PACC hosted both the Square Table on Poverty which included MPP Frank Klees and MP Belinda Stronach (although she usually sent a pair of stand ins) and Newmarket York Regional Councilor John Taylor among some including the now Mayor of East Gwillumbury, and as well hosted and prepared a social audit report outlining these issues which the region endorsed, but has since ignored. Questions of dignity and treatment of clients was a number one reported issue but little has changed to address it still. All I hear is fluff about how wonderful the same charities and care givers are doing, whilst people like Dan cry out to no one listening or face waiting lists too long to wait for. People need to go to bed every night.

He's spoken up before, as a participant in both the social audit, while in proces of having his child taken at birth based on his disability, and as well as part of that "Square Table on Poverty" so many years ago now it seems. His issue then was that he couldn't work because he deejayed and they had no transit service to get him there and back. That was 7 or 8 years ago - in 2014 they just finally began offering service to disabled after 10 pm after more PACC noise.

One idea that sprang from the Square Table was that they were also going to help start up a non-profit business that Dan was instrumental in seeing a need for, which was the trend toward people throwing out returnable bottles and a service that would pick them up. At the time, during the Square Table on Poverty which included someone from every level of government, MPP Frank Klees had a restauranteur that was interested to have the service he'd said and Stronach's person insisted they wanted to help make it so and would arrange a meeting there. Well it never happened that's all we know. I don't care who walked across what floor politically; all I know is nothing got done from ther on in so we folded the group. For years Dan asked me about that business that never was and the meeting that never happened. I guess a guy can dream. Meantime we complained about transit so he could DJ at least on occasion.

Virtually the same crew still runs the ships he's complained to, and PACC's efforts have been ignored or stifled, so he's been feeling helpless, even depressed. Imagine losing all control of things around you, and none would be so if not for your disability. You'd even have privacy for the most basic of needs like going to the bathroom.

HE STILL GET'S NO ASSISTANCE TO BED TODAYDEC - Jan 19 2014

THAT'S OKAY I'M KEEPING A TAB AND WILL BE BILLING THE COMPANY LATER FOR MY 'TEMP' SERVICES AND THEN DONATING THE MONEY TO DAN SO HE CAN MAYBE BUY SOME GROCERIES.

Dan relies on charity organizations just to get out his door. Well, guess what? They've shown up once all this desperate winter and he's now, in addition to that dilemma, had to deal with getting to bed, but today was a last straw for me - for this service provider company to now tell him they can't have anyone come and get him out of bed until 12:30 pm Sunday, when offering a to bed service time at 7pm, is outrageous and cruel. They don't give him a choice either, he is simply informed they don't have anyone today and that the end of it. Not today!

I referred Dan's dilemma once again to MPP Klees' office and as yet have heard nothing back. MP Lois Brown told Dan exactly what I told him she would whixch was that "it wasn't her department but she'd make some calls". Regional Councilotr John Taylor - the one with the most influence on the issue at hand and it's state - has thus far informed Dan about the new later service available for transit now and will get back to him regarding the CCAC / Caregivers issue and getting to bed. I hope he figures it out soon because I'm sure Dan is not the only one being forced into these vulnerable and inhumane conditions. This is Canada for Gosh sakes have we forgotten everything we stand for in our rush towards the " Canadian Dream?" And what pray tell is that dream anyway? To make excuses for everything wrong we do? Or to make results? I don't know anymore.

I plan to take action to raise a petition to have this company removed as care givers of our disabled. It is disgraceful, and when clients or patients tell these companies they are not being treated with respect - by repeat offenders - we also expect action not reward with new contracts because they are the cheapest. Shop around. You want to be in the human care BUSINESS you better be into it for the right reasons or get out!

Too much charity...not enough care.

Stay tuned!




PACC and Youth Challenge in Newmarket

Happy New Year! A message from me.

Since the provincial government announced restructuring(downloading) and cuts to anti-homelessness programs - such as the Community Start-Up Program - an influx of concern has been raised on the ground level. These funds also helped keep families on the brink in their homes and with winter now upon us, along with closer to home announcements that funds to the areas winter shelters have been cut as well, it seems we're going backward and not forward.

Although locally we did make some noise regarding wheeltrans times for transit users which allowed guys like PACCer Danny Philion to not only go out for New Year's Eve 2012-13 but work that evening to make much needed cash as well as now ongoing trans for those times beyond that night! PACCers efforts helped grease their wheels and move him into a paying job for the night - so he was coat-check and not Djing this time!- and possibly beyond since he can now simply actually get home!
Watch for Kiddy Korner at RHockey Challenge.

From that evening he connected with someone who's going to perhaps assist him raising funds for MD of which he's afflicted and was invited to join a car club - even though he doesn't drive in his condition. Dan's a car buff though, and his new found connection seems to have breathed new life into him. All because he could get there and back - and through noise part of which was made by P.A.C.C..

But the fact that I got a national honour, with the awarding  of a Queens Diamond Jubilee medal, and no mention in the local papers, speaks volumes to me. Not that I care about the accolades, but it should matter to you too that my / our work / voice is muffled locally.

Although I believe I have been affective through online work, campaigns, and blogging to truly reach the masses you need also some mainstream press / support and to that point, their boycott of our message can likely be attributed to my outspokenness.

Yes, I've been critical of local media in the past and a number of organizations - but critical in order that true accountability and facts can be represented - and not just spoon-fed organizational boosting stories that some turn out to be. If I've felt a program(s) or statement or shelter need was a farce I've communicated it, but only after feedback from users and some research. Still with no "letters to the Editor" getting in, they are winning. Others need take up the struggle.
Dan and PACC fought for right to transportation on Rogers TV
Perhaps a new voice need be at the forefront in order to make more in-roads.  I do not know. All I do know is after the upcoming youth road hockey event I will reassess my position with PACC, and likely ask to continue on but in a more supportive role not as chair.

Maybe I'll concentrate on creating a division that offers real programs/training/hope and include those from experience at all levels. Even youth programs using our community building experience to work. We've dabbled in that and I've had interest but PACCers can decide.

At any rate, with your support, I look forward to trying to pull off a successful 2013 Friendly Neighbourhood Youth Road Hockey Challenge this March !!